Day 408

A brief rundown of the last week or so:

Cassie was on Methergine since she left the hospital in November and although the headache did come back it was around a 5 on the pain scale.  She returned to school at the start of second semester and we continued to work with the doctors to get her pain to stop altogether. 

Well she had a breakthrough headache and the Methergine stopped working.  Since this medicine has lots of nasty side effects that would have Cassie getting EKGs and Catscans every 6 months, and it stopped working, she was weaned off.  The medicine was out of her system by Friday, February 10th and she started her new medicine on the 11th.

This medicine here, Naratriptan (Amerge), reminds me of a medicine like Immitrex.  According to the instructions it is to be taken at the start of a migraine and cannot be taken on a regular basis...unless you are a doctor and know it can be so now we are waiting for the authorization to be approved so we can get more than 9 pills at a time.  At the time when Cassie started taking this med her headache was between an 8 and 9, but when she takes it her pain level is a 7.  After a couple of hours it wears off and she's back where she started...so now quick fixes with this one (why am I not suprised...none of them have been quick fixes).  So I called the doctor today and they insist that it needs to build up in her system so she is to continue taking it 2x a day until her next appointment there which is the 22nd.  I can't wait to tell Chris he's taking her this time.

It's not that it is a bad place, it is in Lebanon, NH...which is a little over an hour and a half from our house...so it just makes for a long day.  I'm currently waiting for a call back from her pediatrician who she saw on the 10th for physical and bloodwork. 

She is out of school again and now I have to meet with the school about getting her a tutor for the 2nd semester.  I wouldn't mind but I don't even know if she is done with ther 1st semester classes.  I'm trying to keep her as up to date in school as possible but I feel such opposition sometimes when I try to get answers.

I'm completely stressed out and just frazzled over this whole situation...damn it I want my daughter back!