I did start a blog posting about two weeks ago during a ferocious meltdown with the school and my husband. Although my frustration with the school continues that particular posting started with misinformation...so thankfully I didn't post it cause that would have been very bad.
Cassie's headache continues to remain a 7. She attended her sophomore semi-formal dance on Friday and she looked beautiful.
She had a great time with her friends which made hubby and I happy...she even had a friend sleepover all weekend. Such a wonderful change of pace. Cassie also has an admirer who she's seen a couple of times. I won't go into any mushy, embarrassing details, but he seems like a nice guy and I met his mother and she was nice as well. He hasn't officially asked her out but they plan to see each other again...ahhh, young romance...makes me wanna barf.
Cassie started attending not just one but two classes starting today and she has a bus ride home which makes hubby happy cause he doesn't have to leave work to pick her up. I know she is really stressed out about the situation but I will not be making her go for more classes...it will just be too much and I'd like to keep moving forward instead of backward to her not being able to go to school at all.
The school...oh the school...it makes me want to stab something sharp in my eye. Ugh, I know that there are standard operating procedures in place so that every "i" is dotted and every "t" is crossed so they can't possibly be at fault...but in doing so they make it so difficult on the parents and the student. They wanted her to attend one class, which we agreed to and she did. Within the first 2 days I was already getting hints of her attending a second class. That really aggravated me that I felt pressure to push it to 2 classes after only a couple of days...but I fought back and told them she'd go to 2 on the 19th. Then, they give me a hard time because Cassie's note regarding not attending school due to her headache is signed by a "nurse". It isn't signed by a nurse it is signed by a nurse-practitioner...one step below a doctor basically. So, now I have to get a new note about busing and her attending classes without changing too much of what is already in place because the school will then turn around and try to force something upon us that we don't want to happen.
The nurse-practitioner was not very happy that I had to have a new note signed by a "doctor" and she wrote the note stating all her credentials and signed it...which I thought was awesome. What really gets me worked up into a tizzy about the school is that I feel there is so much being placed on Cassie attending school full time instead of Cassie getting her school work done at any cost so she can graduate to a junior level student in the fall. So, after speaking my mind I now have to attend ANOTHER meeting next Monday to iron out Cassie's new schedule and busing situation (because they make this so painful) and her credit situation (which I already know because nothing much has changed since our last meeting except she'll probably pass 2 classes because those are the ones she is attending). I feel like these meetings are a joke because everyone seems so happy and helpful in the meeting...then I get the opposite in e-mails. Hubby is coming, and he knows I am pissed off...hopefully he can keep me relaxed.
The other news I have is Cassie's lumbar puncture came back negative...which I had expected. So we've started the paperwork needed to have Cassie stay at the inpatient facility in Michigan. I don't know how long this is going to take but I want Cassie to get better instead of pushing it off and going through all this crap even longer. She doesn't want to go but I told her it isn't really like a hospital...the rooms are almost like hotel rooms so it won't seem so cold and generic. Oh well, I have to do what I have to do to get her better.
Hello,
ReplyDeleteI read this blog by accident. I was checking on the headache blog I have for our daughter's headache. I read your comments about school. My daughter had a similar issue last year, her junior year. Ask them about a 504 for your daughter. I think all states offer this. it basically makes it a requirement for teachers to make accommodations for your child regarding their home work. I had to ask for it a couple times. It is only about 10 minutes of paperwork and a note from a doctor.
Now the headache, my daughter had constant pain for 10 months. Prior to that is started as occasional pain that evolved into a constant 24/7 headache. She was diagnosed with migraine, and hospitalized for IV therapy (DHE). I bet this sounds familiar to you. Anyway, look at our blog...www.mydaughtersheadache.com
Dayna, my daughter, was at her wits ends. Her friends stopped coming around, and she began to isolate herself. That worried me nore than the headache, really. After googling every symptom she had, we came across an article about nerve decompression micro surgery. None of her doctors were informed about it. We live in the Chicago area. dayna ws treated at Diamond Headache Clinic and Northwestern Memorial. We tried to get her into Mayo but they told us she was already seeing the "experts". WEll the experts she was seeing did nothing for her excepts give her meds that gave her nast side effect and did nothing to help her pain. When her hair started falling out, that was enough for her and she was weaned off the meds. With that, we started looking into the surgical option. After thinking about it, praying for help and more research, we pursued the option. Dr. Ducic, peripherial nerve surgeon at Georgetown University Hospital, talked to Dayna on the phone and wanted to set up a consult to evaluate her. Dayna was a candidate for the surgery. She had 2 procedures to decompress the nerves in her forehead and her temple. I am happy to say that she is in school full time, in honors and AP Classes and enjoying her friends again.
My daughter was finally diagnosed with neuralgia by her doctor at Northwestern. The Clinic disputed that diagnosis. Dr. Ducic fixed the problem. She back to 99%. I only say that because, if she does get a headache, we all get scared. But then we find out it is a regular headache that will go away on its own or with over the counter meds. There are several doctors that do these procedures but they are hard to find. If you have a Facebook, go to Headache Hope as many people there have had the procedures with great success. If you would like to contact us, please do so through our website or at teenazless@aol.com.
I hope this at least gives you another option to look into for your daughter,
Teena
Sorry about all the typos...typing too fast!
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